Hipotiroza & počutje

Pozdravljene,

našla sem (vsaj za moje pojme) super članek o hashi oz. hipotirozi. Pred enim letom sem bila diagnosticirana z hipertirozo, po radiojod terapiji sem zapadla v hudo hipotirozo, poleg tega sem dobila še ščitnično orbitopatijo, tako, da sem na Medrolu in kupu ostalih tablet, da mi ne “frdirba” želodca in kosti. Že eno leto se počutim točno tako, kot je spodaj opisano, in ne morem več poslušati ljudi okoli mene, saj bo, vsi so “pametni” kaj pomaga in kaj naj vzamem. Doma imam zapisanih kup telefonskih in imen, od zdravilcev, in zdravil, ki naj bi pomagala. Hormoni se še zdaj niso uredili, ker se še vedno počutim,kot ožeta cota. Ko sem to prebrala, sem se 1. počutila razumljeno. To sem poslala vsem mojim prijateljem in sorodnikom v upanju, da me bodo malo bolje razumeli. Ampak, ne dojamejo… Tudi moja mama in teta sta diagnosticirani z hipotirozo, ampak one dve sta cool in tudi od njih sem poslušala, ja, da bo bolje… ŽE 1 LETO NI BOLJE! Ko nisi gospodar svojega telesa in svojih misli…

Lp,

Maruša

Insight into what Hashimoto’s/hypothyroidism can do to people who suffer from it.
Perhaps if people understood more, they would be more understanding. It’s difficult to grasp the scope of what this illness can do to us when we’re not diagnosed correctly, or kept under medicated.
It may help to share it.

Hi. My name is Hashimoto’s. I’m an invisible autoimmune disease that attacks your thyroid gland causing you to become hypothyroid.
I am now velcroed to you for life. If you have hypothyroidism, you probably have me. I am the number one cause of it in the U.S. and many other places around the world.
I’m so sneaky–I don’t always show up in your blood work.
Others around you can’t see me or hear me, but YOUR body feels me.
I can attack you anywhere and any way I please.
I can cause severe pain or, if I’m in a good mood, I can just cause you to ache all over.
Remember when you and energy ran around together and had fun?
I took energy from you, and gave you exhaustion. Try to have fun now.
I can take good sleep from you and in its place, give you brain fog and lack of concentration.
I can make you want to sleep 24/7, and I can also cause insomnia.
I can make you tremble internally or make you feel cold or hot when everyone else feels normal.
I can also give you swollen hands and feet, swollen face and eyelids, swollen everything.
I can make you feel very anxious with panic attacks or very depressed. I can also cause other mental health problems. You know crazy mood swings? That’s me. Crying for no reason? Angry for no reason? That’s probably me too.
I can make your hair fall out, become dry and brittle, cause acne, cause dry skin, the sky is the limit with me.
I can make you gain weight and no matter what you eat or how much you exercise, I can keep that weight on you. I can also make you lose weight. I don’t discriminate.
Some of my other autoimmune disease friends often join me, giving you even more to deal with.
If you have something planned, or are looking forward to a great day, I can take that away from you. You didn’t ask for me. I chose you for various reasons:
That virus or viruses you had that you never really recovered from, or that car accident, or maybe it was the years of abuse and trauma (I thrive on stress.) You may have a family history of me. Whatever the cause, I’m here to stay.
I hear you’re going to see a doctor to try and get rid of me. That makes me laugh. Just try. You will have to go to many, many doctors until you find one who can help you effectively.
You will be put on the wrong medication for you, pain pills, sleeping pills, energy pills, told you are suffering from anxiety or depression, given anti-anxiety pills and antidepressants.
There are so many other ways I can make you sick and miserable, the list is endless – that high cholesterol, gall bladder issue, blood pressure issue, blood sugar issue, heart issue among others? That’s probably me.
Can’t get pregnant, or have had a miscarriage?
That’s probably me too.
Shortness of breath or “air hunger?” Yep, probably me.
Liver enzymes elevated? Yep, probably me.
Teeth and gum problems? TMJ?
Hives? Yep, probably me.
I told you the list was endless.
You may be given a TENs unit, get massaged, told if you just sleep and exercise properly I will go away.
You’ll be told to think positively, you’ll be poked, prodded, and MOST OF ALL, not taken seriously when you try to explain to the endless number of doctors you’ve seen, just how debilitating I am and how ill and exhausted you really feel. In all probability you will get a referral from these ‘understanding’ (clueless) doctors, to see a psychiatrist.
Your family, friends and co-workers will all listen to you until they just get tired of hearing about how I make you feel, and just how debilitating I can be.
Some of them will say things like “Oh, you are just having a bad day” or “Well, remember, you can’t do the things you use to do 20 YEARS ago”, not hearing that you said 20 DAYS ago.
They’ll also say things like, “if you just get up and move, get outside and do things, you’ll feel better.” They won’t understand that I take away the ‘gas’ that powers your body and mind to ENABLE you to do those things.
Some will start talking behind your back, they’ll call you a hypochondriac, while you slowly feel that you are losing your dignity trying to make them understand, especially if you are in the middle of a conversation with a “normal” person, and can’t remember what you were going to say next. You’ll be told things like, “Oh, my grandmother had that, and she’s fine on her medication” when you desperately want to explain that I don’t impose myself upon everyone in the exact same way, and just because that grandmother is fine on the medication SHE’S taking, doesn’t mean it will work for you.
They will not understand that having this disease impacts your body from the top of your head to the tip of your toes, and that every cell and every body system and organ requires the proper amount and the right kind of of thyroid hormone medication for YOU.
Not what works for someone else.
The only place you will get the kind of support and understanding in dealing with me is with other people that have me. They are really the only ones who can truly understand.
I am Hashimoto’s Disease.

Hvala za tale članek 🙂

Hvala za članek, še predobro vem kako je 😉

Pozdravlljeni,

sem dokaj nova v the vodah. Da mi ščitnica ne deluje sem izvedela pred enim mesecom . In kljub rednemu jemanju Euthyrox 50 mg, dnevno, se še vedno ne počutim dobro. Razpoloženje niha, joj sem včasih zoprna, bogi moji domači ker nimam za nobenega potrplenja, no ja saj ni skoz tako ampak me pa vsaka stvar spravi iz tira. Najhuje je ker niti sama ne vem kdaj bo šlo čez. Kakšen teden pa se mi sedaj ful vrti v glavi, in tudi slabo mi je kot bi bila skoz na neki barki, kot da imam morsko bolezen. Je to normalno?
Teža mi tudi skoz narašča mi gre na živce za hlače oblešt ker imam občutek da me tiščijo. Kako dolgo ste vi potrebovali da se je stanje umirilo? Se je tudi komu od vas tako vrtelo ali bi bila lahko vzrok kje drugje in ne v ščitnici?
No če imate pa kakšne spodbudne novice za nihanje razpoloženja bom pa sploh srečna, ker to pa res rabim, ne samo jaz to vpliva tudi na tiste ki jih imam najraje.

Pozdravljena Sabina,

Dobro, da si dokaj zgodaj prišla na tale forum, glede na to, da si za stanje ščitnice izvedela pred kakim mesecem. Tukaj boš našla številne nasvete, ker zdravniki nič kaj dosti ne povejo, vsaj pri meni je blo tko. Jaz imam preveliko delovanje ščitnice in jemljem Eutirox odmerek 125, kar je kar veliko, odstranili so mi del ščitnice. Simptome katere opisuješ se pogosto pojavljajo pri tej bolezni, so pa še hujši pojavi kot npr. hitreje bitje srca, stisk v grlu, raztresenost….

Vrtoglavica se tudi pogosto pojavlja, vendar moja izkušnja je taka, da sem sedaj s tableti uredila ravnovesje. Vrtoglavico pa sem imela predvsem zaradi pomanjkanja železa! Zato ti predlagam, da pri splošnem zdravniku daš kri, kjer bo jo preverili železo. Ko sem začela jemati dopolnila k prehrani železo in vitamin C, vrtoglavice nisem imela več. Zdaj na vsake toliko časa ko začutim utrujenost ali rahlo vrtoglavico vzamem nekaj za železo, tega imajo kar nekaj na tržišču – lekarnah…

Upam, da sem ti vsaj malo lahko pomagala

lp
S

Pozdravljena Sabina,
nihanje razpoloženja je povsem običajna težava ščitničnih bolnikov, vrtoglavica in občasna slabost pa po mojem mnenju (težave imam že dve desetletji) nista v povezavi s ščitnico. Predlagam ti, da zadevo preveriš pri zdravniku. Srečno!